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In other news, the Oxegen festival was a pile of fail. I left a comment in [ profile] gothhippiegrrl's LJ about it,

Oh, it turned out to be a giant pile of fail; the disability provision was basically only any use if you had the right kind of disability aka wheelchair/crutches. They wouldn't let us in at the gate which was literally opposite our own gate, because that wasn't an authorised entrance. They insisted we had to go round to the disabled car park, which a) we were on foot b) it was a longish walk from the disabled car park to the main arena. They drove us round to the disabled car park, about three-quarters of a mile away, and we walked to the main arena. I figured as long as I could just sit down and be comfortable for the gig, I'd be ok to walk back to the disabled car park and James would have to walk back home from there and get the car to pick me up.

I didn't get to be comfortable because the seats at the disabled area were all too small and I couldn't trust them to hold my weight, so I tried to sit on the floor of the platform, on a bedroll James had brought with. Unfortunately, the bedroll was narrow and I am wide, and the floor was covered in muddy wet crud because it'd been raining, so after 10 minutes of trying to balance and in the process screwing up my arms, back and legs even further, I stood up. Because I was in so much pain, I went into autie sensory-overload meltdown when one of the songs had a siren in it.

At this point I just wanted to go home, and we were right near the gate closest to our house but we knew we wouldn't be allowed to use it. James asked the disability assistant to sort out some kind of transport for me to get to the authorised exit. We were then left waiting for nearly two hours, even after the gig had ended and everyone else had left the arena. I collapsed eventually, which got their attention and the medics turned up; James then had to keep telling them not to touch me and that all I needed was transport to the gate. There was a lot of faff while I was lying on my back on the hard, cold, damp, dirty ground crying with humiliation and frustration. Eventually they got a buggy thing and I got onto it. We kept saying we lived literally across the road but they said all the gates had been locked down and we had to go in an ambulance to the local hospital and transport home would be arranged from there, which is ridiculous. In the end they took us on the buggy to the bit where all the ambulances were and we got taken home in the sodding ambulance; the drivers were really confused about why it had taken so long to get me home when I lived 30 seconds' drive away.

Needless to say, I was in too much pain to go anywhere the next day or the day after and we knew the accommodations weren't in place anyway. The whole thing could have been prevented by a) them letting us in at the gate opposite the farm OR having some kind of transport from the disabled car park to the main arena and b) having a few larger chairs at the disabled podium. But there you go; you're only allowed to be the right kind of disabled person, that is, visibly disabled and using a mobility aid, and above all, Not Fat.

In other other news, I am unreasonably excited about going to see the new Harry Potter film, despite knowing that I will want to throw things at the screen at certain points. I can't go until Friday night at the earliest because every ticket within a 30 mile radius is booked, but EEEEEEE.

I have an appointment with a neurologist tomorrow, which will hopefully a) be the start of getting some control over my migraines, which really are the worst part of being me because they ruin almost everything and prevent me from doing nearly anything b) go better than the fucking awful endocrinologist appointment I had last week which was so unspeakably awful that I'm going to write a letter of complaint. The woman was dismissive, ignorant, arrogant, fatphobic, hostile, didn't bloody listen, and TOUCHED MY HEAD (scrabbling about in my hair) without asking first and then tried to make out that I was in the wrong when I freaked out. I'd go into details but it needs its own post, really, and I might make that post when I've written the complaint letter. James said he was tempted to ask her "Are you a real doctor?" I wish he had. He's been referred to the Marfan clinic in Dublin which means HOORAY he will get proper treatment and we will have a better idea of when he needs heart surgery (he has a dilated aortic root and a leaky mitral valve).

I miss being able to talk to people on IM. Our dodgy mobile modem interwebs is terrible and the connection drops at least once every five minutes, sometimes more like twice a minute, so the only chat I can use is Facebook Chat, and even that keeps cutting out.

I must apologise again (and explain to the newer people on my flist) for not being great at answering comments. Migraine is worse than ever, and connection is dodgy, and fibro thoroughly kicks my arse on a regular basis, and I am basically just rubbish at replying. However, I do make a very tasty clafouti, which I would never have thought to try had it not been mentioned several times by [ profile] ailbhe, so thank you [ profile] ailbhe*!.

*for some reason I really like typing the name "ailbhe"

Date: 2009-07-15 06:42 pm (UTC)
From: [identity profile]
KILLING BEES!?!?!?!?!?!?!?!?


Date: 2009-07-15 06:48 pm (UTC)
From: [identity profile]

Thankfully a lot of people have responded with CALL A BEEKEEPER FOR THE LOVE OF BOB DO NOT KILL THE BEES

Date: 2009-07-15 06:58 pm (UTC)
From: [identity profile]
I'm a beekeeper. What is the problem with the bees?

Date: 2009-07-15 07:09 pm (UTC)
From: [identity profile]
We'd have been beekeepers by now if my brother hadn't had to bring his wedding forward (we had to use our start-up money on flights and outfits so now we have to wait until next year, but we're members of the local beekeeping association and are subscribed to An Beachaire). The problem with the bees is here, and I have refrained from commenting because, well, you saw my opinion at the beginning of this post.

Date: 2009-07-15 07:48 pm (UTC)
From: [identity profile]
Setting-up by buying everything is expensive.

I was planning to make beehives and most of my equipment. The hives can be constructed from marine plywood and ordinary timber; the beekeeping kit is a set of white overalls with the pocket-holes sewn up and riggers' gloves sewn into the arms, and a broad-brimmed hat with black gauze around the brim. The only thing that is hard is a smoker, which I was planning to weld up out of tin cans. I'm sure I can weld up two. :-)

I'd make a floorboard, a brood-box (deep frame) and two or three supers per hive, and a roof the same way as the floor with sheet metal bent over it to keep the rain off. I'll also make a feeder to go with a couple of hives.

If you've joined your local beekeepers' branch, someone probably has a honey-extractor they can lend.

There will be detailed instructions with pictures on [ profile] muddyfarm when I get around to it. After we've got in the cottage, but before May next year, if all goes to plan. I don't know how good you two are at woodwork, but if you have power-tools, it shouldn't be physically demanding. Certainly not as physically demanding as lifting a deep frame full of brood or honey, when wearing overalls in hot June weather.

(You might want a brood chamber with two "super" frames instead of a deep frame, if you want to avoid lifting. I use split brood boxes anyway, as it makes it easier to spot the queen cells, as they build them at the bottom of the top frame.)

The only things I'll not make are the frames and foundation, and the queen-excluders. They are not expensive.

If you are lucky (and this happened to me several times when I used to keep bees, back in pre-CCD, pre-Varroa days) empty hives miraculously become full around May or June.

If you are less lucky, they'll colonise empty boxes, and build their own comb ... at ninety degrees to the frames that are in the empty hive. But that is another beekeeping story. :-(

Date: 2009-07-15 07:18 pm (UTC)
From: [identity profile]
Bees scare the crap out of me. I'm always afraid that if I try to kill one and miss, it'll come after me. So I usually just scream like a girl and run away. Heh.

We DO have a huge nest of wasps outside of our apartment, which we spray with bug spray only because we have a curious kitty. We're afraid she'll sniff at the nest and then they'll come after her. She got stung about a year ago on her belly, and THAT freaked me out.

Date: 2009-07-15 07:21 pm (UTC)
From: [identity profile]
Yeah, I'm not keen on wasps and I would get someone in to get rid of them, but bees! Bees are Very Important. Also, bees only sting if they think they're going to die anyway, because (as you probably know), the act of stinging kills them.

Date: 2009-07-15 07:29 pm (UTC)
From: [identity profile]
Yes, I try to leave the bees alone. Wasps and hornets, on the other hand, can suck it.

Date: 2009-07-15 07:45 pm (UTC)
From: [identity profile]
Once you have seen the film, read my post. I am sure you will agree with most (if not all) of it.

I shall discuss the rest of this post - the parts which we have not already discussed - on le phoerne.


Date: 2009-07-15 11:00 pm (UTC)
From: [identity profile]
I couldn't concentrate on my Blur gig because it was a nightmare of OUTSIDE and PEOPLE and SENSORY whilst simultaneously being BORED but mang there is no option for comfort if you are not the right kind of disabled!0 I bet the provisions for the right kind of disabled are pretty crappy too but that's not right either! But clearly yours was worse but it proves further suckage of events like this. I am excited about HP too! xxx

Date: 2009-07-16 12:05 am (UTC)
From: [identity profile]
I hope you write a letter of complaint to those asshats who can't set up a venue properly. Ye Fucking Gods! >=(

I hope that things go better for you soon and you don't have to deal with fuckwit doctors either.


*big hugs*

Date: 2009-07-16 08:19 am (UTC)
From: [identity profile]
So stupid that a gig going on opposite your gate should be so difficult to enjoy. I am constantly amazed at the stupidity and inflexibility of people. Does no-one have any common sense these days? As for your endocrinologist.....Jeez! I never put up with people not telling me things properly, a pity James did not ask her if she was a real doctor. I didnt know you had issues about being touched but normally they tell you what they are going to do before they do it. Delighted to hear that James has got an appointment to see the specialist and you will soon know what treatment - and the timing of it - will be appropriate.
Fingers crossed for a successful migraine expert analysis. You have my sympathy on that one as both my mother and my sister suffered really badly from them. Fortunately it missed me, but I believe Firekitten gets them occasionally. My mother used to get 1 or 2 a week each of which would knock her out for 1 or 2 days. This was during her late 40s and early 50s. If its any consolation they stopped after she went through the change of life. My sister's stopped when they treated her high blood pressure (about the same sort of time). Anyway good luck with the specialist, let's hope they can come up with some useful treatment.

Date: 2009-07-16 11:31 am (UTC)
From: [identity profile]
There's a Marfan clinic in Dublin? I didn't know about that. Is it a specialised clinic, or just a cardiology-type-place?

When I was finally sent to 'the hub of international Marfans research', I was ushered into a portacabin at the back of Addenbrooke's. Seriously.

Date: 2009-07-17 04:05 pm (UTC)
From: [identity profile]
gig organisers - why so complicated!
fail-tastic doctors - why so being near Shiras?

Here's to the neurologist being a lot less fail-tastic, and ditto for the marfan clinic!



Date: 2009-07-28 10:46 am (UTC)
From: [identity profile]
only if they are deadly killer bees from South America who somehow flew the Atlantic and are on a killing spree in Ireland... otherwise WTF...

oh and if you don't have a wheelchair or crutches here - you must be just FINE! Stoopidity abounds - run away! oh wait, we can't run

do tell about the neurologist - we wait with baited breath...

and yes I know it's early here - unable to sleep - congestion and diarrhea... a lovely combo... blech!


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